MS Myths I Stopped Believing

When I got my diagnosis, I believed a lot of things.

Some came from specialists.

Some from Facebook groups.

And some… straight from fear.

At first, everything felt true. Scary. Urgent.

Eight years later, I see that many of these beliefs were holding me back.

Pressure. Doubt.

Feeling like everything was doomed.

So I started clearing out the myths.

Myth #1: “Everything will get worse fast.”

Hearing “progressive” and “unpredictable” made my brain go:

It’s downhill from here.

But it’s not automatic.

Yes, there are tough periods.

Yes, some things need more energy.

But there are also stable phases. Adjustments that help. Moments that feel good.

Progression ≠ free fall.

Now, I just adjust. That’s it.

Myth #2: “There’s only one right way to manage MS.”

I used to think there was a single “correct” path.

Official protocol. Correct way. Step out of line, take a risk.

But every body is different.

What works for one might do nothing for another.

There isn’t one path—there are choices.

Experiments. Adjustments.

The key: what works for YOU.

Myth #3: “Good days don’t count.”

Good days used to make me suspicious.

Couldn’t last.

Just a calm before the storm.

But good days are real days.

Progress counts—even small wins.

I stopped minimizing what was going well.

Now I take the good without guilt or panic.

Myth #4: “I have to fix everything at once.”

At first, I wanted to optimize, understand, fix… everything.

Diet. Supplements. Try a thousand things.

But when everything changes at once, you don’t know what actually works.

Now: one thing at a time.

Observe.

Adjust.

No rush. It’s a process.

Myth #5: “I am my disease.”

I used to say “my MS.”

Like it owned me. Like it defined me.

Then someone said:

It’s not YOUR disease. It’s A disease.

That changed everything.

I’m not a diagnosis.

I’m not an MRI.

I’m a person living with a disease.

An important distinction.

Every myth I let go made me freer, more myself.

These are MY myths, for MY experience.

Accepting MS isn’t giving up—it’s living with it without letting it define me.

And that? That’s worth everything. 💛